Saturday, May 21, 2011

The Beginning of Great Things to Come

Probably the coolest thing that Logan has ever physically done happend last night.  I know I was pretty excited when he started crawling down the track a few months ago, but this was even more thrilling.  It gives me hope that bigger and better things are in store (and not too far away)!  Logan has this Fisher Price toy that is like "Rock Band" for babies.  It has a little guitar, keyboard, drum, and horn right in front for him to bang and hit.  There is mirror with blinking lights and all the fun sounds/songs you could imagine.  This toy has been a life-saver since he has about 5 months old.  Even when Logan couldn't sit up on his own, we would prop pillows around him to keep him upright.  Eventually, when he could sit on his own, but would still fling himself backwards on occasion, we just kept the Boppy pillow behind him as a safety net.  Now, he's sitting on his own 100% of the time, and there doesn't have to be a pillow in sight.  About a week ago, I was in the kitchen making dinner and had left Logan in the family room sitting in front of this toy.  I peeked around the corner to check on him, and what did I find?  Oh, just Logan lying with his back on the ground, with his arms wrapped fully around the toy which was crushed on top of him.  Was he crying?  Absolutely not.  He was grinning ear to ear and sucking on the mirror : )  Such a tough guy!

So...last night while I was upstairs, Olin yelled up to me that Logan had just pulled himself from sitting "Indian style" to his knees.  I thought...No way! I had to see it for myself.  Logan was sitting about a foot, maybe a foot and a half in front of his Rock Band stage.  Then he reached out and grabbed the side and the keyboard part with each hand.  With all his might, he pulled himself face to face with the mirror.  Then somehow, he turned his legs just enough to get to his knees.  I won't pretend it was effortless or graceful (he banged his mouth on one attempt), but he did it nonetheless! He did it.  I have never seen a kid, much less his parents, more excited about an accomplishment.  He was sooooo excited about this new trick he had discovered...he could hardly contain his excitement.  It was awesome.

I am hopeful that this transition move will just lead into many more new things that Logan will begin to try out physically. First pulling up to knees, then to his feet.  I can't imaginen how cool that will be!  The video is a little long, but totally worth it (in my opinion)! Go Logan!

Tuesday, May 10, 2011

A Fresh Start and a Dirty Diaper




The night before...

Wow...so much has happened in the last week or so, I'm not sure where to even start!  I feel like we are living a different life now that irrigations and ear infections are over...I don't think I realized how stressed and anxious I was about the whole situation.  Now that the anticipation of the surgery, the actual surgery, and the recovery are complete, I feel like our out of control roller coaster is finally coming to a stop. 
According to the surgeon, Logan's surgery could not have gone any better!  Although, the day before the procedure, we were questioning if it would even take place.  The week of the surgery, Logan's ear infection flared up (even with tubes), he had a runny nose, and he was vomitting until late Thursday afternoon.  The pediatrician had put him on Augmentin for his ears, but we think that it was upsetting his stomach.  Either way...I was in a panic that they would not do the surgery if he was still sick on Friday.  Luckily, he kept down his last bottle Thursday night, and seemed to be on the way to recovery the next morning.  I had worried and worried that Friday morning would be a battle since Logan was not allowed to eat formula or solids after midnight and only clear liquids until 9:00.  We arrived at the hospital around 11:00, but the procedure wasn't scheduled until 1:00.  I don't know why I was worried though... our little angel never cried or fussed the entire morning.  He was smiling the whole time and showing off some of his new crawling skills in the big bed.  All of his grandparents made it to the hospital in time to give him kisses before they wheeled him away to the operating room.  I wish I had taken a picture of that scene though.  He was dressed in this too big bright purple gown with space ships on it...his hair was all curly and poofed up in the front, and he had is right arm holding on to the side of the bed like "Okay, that was fun, but where do you think you are taking me now?"  Pretty adorable.

 
In the waiting room...still happy
The surgery was expected to take 3-4 hours so we packed as many magazines with "William and Kate" on the cover as we could find and got comfortable in the waiting room.  Exactly three hours later, the nurse reported that Logan was out of surgery and she would take us to our new room.  When Logan first came back to us, he was completely out of it.  Occasionally, he'd open his eyes for like five seconds, and then the weight of them would pull them shut.  It was at least three hours before he was semi-alert and reconized us (he was on some pretty strong pain medication at that point).  If you've ever had to stay the night at Scottish Rite, then you know that there is only one futon like bed in the room.  It's defnitely a tight squeeze for two people.  Logan was not the happiest camper that night so I ended up sleeping in his "cage" next to him.  It was literally like our own little prison cell three feet off the ground.  It was actually was good to be in there because I could ask what medicine they were giving him and be right there when he'd wake up crying.  Needless to say, it was a long night (well, make that two nights...although, Olin slept in the cage one night too!)


Coming out of surgery


Saturday and Sunday came and went with lots of cafeteria food (albeit a little food poisoning for Olin), some visits from friends and family, and tons of POOP.  It was crazy...Logan began "going" almost immediately after he came back from surgery.  We probably changed at least three dirty diapers that night.  You have never seen two people more excited about poop than me and Olin.  I mean, it has really been since like the first few days as a newborn that Logan pooped on his own.  I can honestly say that in sixteen months, I never had to change a dirty diaper in public! I swore I would never complain about changing poopy diapers again, and so far, I haven't! 


 
Asleep in the wagon after a trip to the Koi Pond and cafeteria

It's just so good to see Logan feeling well.  You can just tell he feels better.  I can't imagine what he must have felt like for the last almost year and a half...constipated all of the time...pretty miserable.  The only bad thing has been the diaper rash.  His poor little butt is so red.  It's like someone who has never worked out and has blisters on their feet from not being used to exercising.  His bottom is not used to the constant sh*t that is coming out of it.  It will probably just take a little time for his skin to adjust...until then, we are stocked up on diaper cream!  He had three incisions made on his stomach...one in his belly button, and one on each side of his tummy.  You can't even see the belly button scar anymore, and the two other ones are healing great.  After just one day, Logan was only taking Tylenol for the pain.  For such a little guy, his strength is pretty amazing.  Of course he had a few fussy moments over the weekend, but for the most part, you would never have been able to tell that he'd had surgery just a few days earlier.  Although one doctor got our hopes up for leaving on Mother's Day, we didn't get discharged until Monday.  They just wanted to be sure he was eating and keeping everything down okay.  When we got home, it seemed almost like a dream...or a movie that I had watched of someone else's life.  Logan was doing so well...until I'd smell his dirty diaper, or he'd lift his shirt to show off his new scars, I would forget where we had spent the last three days. 


Check out my scars ladies!



Ready to go home!





I cannot tell you how happy I am that everything went so well for Logan, and that it is over.  I'm still in awe that removing just six inches of his intestine was the trick to getting everything to work properly.  I asked Olin if we should have a burial ceremony for the irrigation catheter : )  I think both of us still have a tiny bit of doubt that this poop extravaganza will be short-lived, but I think it is here to stay!  YAY!   

Thank you all for your continued support and prayers over the last few months.  Your kind words of encouragement have helped lift us on our low days.  We are so thankful for the wonderful doctors and nurses at Scottish Rite who took care of us, and we are so thankful for sweet little Logan and his new and improved colon : )

A quick healer

Monday, May 2, 2011

Set for Surgery

This Friday, Logan will be having his "pull-through" surgery to fix the symptoms of his Hirschsprung's disease.  Our appointment is not until 1:00, so it should be interesting withholding food and drink from him for at least 8 hours before the surgery.  Typically, his procedures are done early in the morning, but if we didn't take the 1:00 time slot, we were looking at waiting until next week or later to get this done.  At his pre-op appointment last Thursday, the doctor was pleased with how empty his colon felt.  I guess Mommy and Daddy are getting pretty good at colonic irrigations : )  Only a few more left to go...yay!

His surgery will be done at Scottish Rite, and should take around 3-4 hours to complete.  I think it takes so long because the doctor has to do multiple biopsies of the intestine to figure out where the bad part begins/ends.  This tissue has to be sent to the lab and looked at so he knows where to make the cut.  Logan will also have four incisions in his belly where the doctor will go in laproscopicly.  Those should heal quickly.  After the procedure, the surgeon says we should see immediate results if all goes well.  They will keep him in the hospital for 4 days, we think...to watch for infection and make sure he has motility.  While the doctor says the risk for infection is very low, they will still keep him on an antibiotic. 

 
It sounds weird to say that I am "excited" about the surgery, but I am just hopeful and ready for all of this to be over.  I just want my baby to poop like everybody else : ) and I promise never to complain about changing a dirty diaper if this surgery is successful.  It is very different this time going into the hospital for an extended period of time.  When Logan had his exploratory surgery at ten days old, we had no idea what we were in for.  We had no idea what was wrong with him in the first place...the problem was...neither did the doctors.  We waited and waited trying to get some answers.  That part was agonizing.  This time is different because we understand the procedure and have a light at the end of the tunnel!  I realized today though that I actually have to "pack" for this little trip.  My mom said to think of it like a vacation.  Hmmm, not so sure about that, but I'll try.  It is a little scary, but I am very confident in Logan's doctor, and I know there will be so many people who will be praying for him.  A week from today, I hope we are bringing him home and laughing at how many dirty diapers he's had over the weekend!
Easter 2011