It's so fun to see Logan doing new things everyday. The anticipation of what he's going to do next makes me so excited. I don't want to say that any of our 19 months with him have been "boring" : ) With 5 surgeries and numerous hospital stays, I can hardly call that uneventful. However, it seems like he's been doing the same things for so long...sitting in one place and slapping at toys. To see him wanting to move now and realize that he can get to where he wants to go is truly exhilarating. I shared his walking video a couple of weeks ago, but tonight he decided that "log rolling" was his preferred mode of transportation. Logan has never rolled more than a half turn (exclusively from front to back until a few weeks ago). Tonight, I was on the floor with him and Olin was laying on the couch. He rolled front to back, then immediately back to front, making a complete rotation. Simultaneously, Olin and I looked at each other with that "Did you see that?" expression on our faces. We gave Logan lots of cheers and then set him in position to try it again. Once he realizes he's succeeding at something, he seems to know that he should do it again. I felt like I was watching Sparky the Dog. He started rolling across the entire carpet in our family room. When he'd reach a dead end, Olin would bring him back to start. The video is long...I tried to edit, but couldn't decide what didn't make the cut. I love him so much!
We had an incredible experience on Saturday that was hopefully just the beginning of many more meetings with our MWS family. Technology is an amazing thing...while I have resisted aspects of it (I still have a flip phone with no internet access and my email account still ends in yahoo.com), it brought together a wonderful group of people this weekend. Through facebook, Olin has befriended many of the MWS families in Georgia. One of the moms organized a gathering at Perimeter Mall on Saturday so that we could all meet up. We planned to just meet in the food court...seemed like a safe place to meet a bunch of strangers : ) Anyways, it turned out to be so awesome. Including us, there were five families. Our Logan was the youngest. Then there was 4 year-old Alex, 6 year-old Andrew, 10 year-old Emily, and 13 year-old Logan. Crazy, isn't it, to have two Logans in GA with MWS?
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| Big Logan and Little Logan |
Oh, there were all so cute...so happy. It's a little uncanny how much they all resemble each other. They all have the same little mouth and smile. You can't help but smile when you see them. It was a little crazy in the food court...we had like five tables pushed together and about 20 people altogether. The kids did really great....thank goodness for Chick-fil-a chicken nuggets! It was just so interesting to see what each child was accomplishing at each stage in their life. Some of the kids were walking really well, some signing. It was just really encouraging to see them doing so well and accomplishing so much.
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| Emily, Andrew, Alex, Logan, and Logan |
I admit I was a little apprehensive to meet these families. Of course, I was excited to be able to speak with moms who totally understand what we've been through. At the same time, I was a little nervous to get a peek into the future. When we left though (after about two hours), I think Olin and I were actually a lot less scared of the road ahead. All of the children had experienced seizures at some point...about 90% of MWS kids do. So, while we aren't "prepared" for that scenario, we understand the liklihood of the situation and feel we'll be able to handle it if we have to. I know it sounds cliche, but the love for these beautiful kids was palpable on Saturday. They have changed the lives of each and every one of us for the better. We definitely are planning some more "play-dates" in the future...most likely in the comfort of someone's house! As much as it hurt when we received Logan's diagnosiss for MWS, it was a blessing because we now have a connection to a group of supportive and amazing people.
2 comments:
I'm sitting here with a big fat grin on my face and goosebumps. It partly b/c of Somewhere Over The Rainbow playing in the background but it's mostly b/c of Logan's (and your) progress and the meeting of new friends who will surely become a big source of inspiration for you guys. Love you all!
Kelly
Thanks Kelly! We were so lucky to have the opportunity to meet these other families. They are definitely a huge source of information. We need to get together soon! Has Lily started back to school?
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